Getting new scans for Carcinoid, October 2013

Carcinoid Cancer is not curable, especially when there is liver involvement.  So, this month I am getting new scans to form a baseline since the surgery.  This baseline will be used in the future to measure changes over time.

Three weeks ago, I had a CT Scan.  I have not seen it yet but I am told that the liver has mostly regenerated and the doctor reports nothing else.  I guess that means that the two spots on my liver that were not removed are still there.  I will get her to show me and discuss next month when we meet.

This week, I am having an octreoscan.  It’s being done differently than the two octreoscans I have had before at a different hospital.  Monday, I was injected with octreotide that has radioactive isotope attached to the molecules (I will be radioactive for about a month with a card to prove it!).  Also I am required to take laxatives the night before each scan and have only liquids each morning before scan.  Tuesday, I had a 40 minute scan.  Today, Wednesday, I had two different 40 minute scans.  I am now waiting to hear if I have to have a scan tomorrow also.  These scans should verify that the spots seen on my liver by the CT Scan are carcinoid tumors.  With luck, we may see the location of the still unlocated primary tumor and no new metastases.

I feel better than I have felt in at least three years!  The tumor that was removed must have been causing at least some of the heart problems which made me feel tired and depressed.  The symptoms of diarrhea, evening chills and night sweats are minimal and infrequent.  In fact the diarrhea only occurs when I ignore my normal triggers and overdo things like high heat, very large meals, dark chocolate and extra hard exercise.

Let’s hope that I can go a few years before more treatments are required other than the monthly injections of Sandostatin LAR.

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5 thoughts on “Getting new scans for Carcinoid, October 2013

    1. HI Linda,
      It scares many cancer patients to get so much radiation. But the alternative is not to know what cancer is doing to you until too late and I’m too old to have much danger from this level of ratiation.

      I think it’s a good trade-off.


  1. Hi Cy, your octreoscans sound very similar to what I had done about a year ago. I did the two days and didn’t need to go in on the third day. Did you hear yet if you need to go in tomorrow? I hope you get good definitive answers!

  2. Do you glow in the dark yet? Sound like mixed news, but I am glad the surgery had positive effects overall. I was thinking of you yesterday and will keep you in mind today.



  3. Nancy,
    Shortly after I posted, I was told that I have to come in for a third scan. Actually, it’s two 45 minute scans.
    I should hear of the analysis in a week and will post any news.

    Thanks, I’m not glowing yet.

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