I met with my oncologist last Thursday and reported the increasing carcinoid symptoms which I mentioned in my last post: “Latest Carcinoid Survival Data”. We also discussed the interesting information from that last post.
The result is that I am having a new test called the 5-HIAA which is inconvenient to do but should give a more accurate measurement of seratonin in my blood stream.
Also, I am in process of scheduling another chemoembolization treatment like I had about a year and a half ago. The treatment takes about an hour in the hospital and I stay overnight afterward. In fact the last time I was in intensive care overnight. During the treatment I had a cardio crisis with very low heart rate and very low blood pressure. It makes me very ill for about 4 weeks but the last time I felt very well for more than 5 months after.
Essentially the doctor insert a catheter in the artery which feed the tumors in the liver and injects chemo (in this case adriamycin) into the liver and then injects tiny beads that block the artery so that the tumor gets no blood. Sometimes the chemo is on the beads. This is possible because the liver gets over 90% if it’s blood from another artery while the tumors get over 90% if their blood from the artery that comes up your leg.
We are also scheduling a visit with an oncologist at University of Colorado Cancer Center. We will talk about my availability and suitablility for clinical trials and he will get to know my case. I have thought that it would be good to have a doctor from outside my HMO take a look at me.
So, back on fun rides again. Who said that I wouldn’t have anything to do after retirement? My days are full!
Edit Feb 13, 2013: I just found a pretty good description of carcinoid tumor at cancer.net “Carcinoid Tumor Overview”. Inexplicably, this and many other overviews do not spend much time on the metastases and treatment of metastases, which is often (certainly in my case) the most immediate problem.