No Change, No Progression

I just got a message from Oncology that my octreoscan indicates “no change, no progression”.  Also Urology reports that my bladder cancer has not recurred.  WOOOO! HOOOO!

Also, they noted that the two metastases in my liver are still there.  No surprise, but at least there are no new ones. These are the best results that I can expect.

Urology is having me do a CT scan on wednesday just to make sure there is no cancer in my kidneys.  This is apparently different from my regular CT scans for carcinoid.  Will let you know of results.

This regular testing and treatment is part of the life of a cancer patient.  I currently scheduled for:

  • Sandostatin LAR Injections every 28 days.
  • 3 to 6 blood tests every 3 months.
  • CT scan every 6 months.
  • Bladder cystoscopy at 6 months
  • Octreoscan every year.

Waiting for test results so often can be a worry.  One always suspects things are not good.  In fact, I find that even though I have generally felt healthy, every small symptom can lead me to believe that things are getting worse.  However, on the flip side, we need all these test to make sure things are not getting significantly worse and requiring action.

I’m glad the medical profession is watching me.



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No Change, No Progression was last modified: December 15th, 2014 by cy

8 thoughts on “No Change, No Progression

  1. BooYah! Congrats! I’ve had good news too…my tumors shrank on afinitor. 🙂 I just found your blog and it’s nice to read good news. Happy holidays and have a great 2015. 🙂

  2. Hi Cy,
    Glad to see the good results. Have you or your MDs ever considered the NETest by Wren Laboratories?
    I had my first test one month ago and will have it repeated every three months because it is the only non-invasive blood test that helps physicians identify the disease activity of neuroendocrine tumors. Subsequent tests will give me a comparative number so that my physicians will know if my chemo is working or not. Unfortunately, their test shows me as “High Risk”, 86.7%, which was expected since I have carcinoid metastases everywhere.
    I would suggest you check out their site. Wren Labs was founded by Dr. Irvin Modlin of Yale who is an MD and D Sc. Definitely Google him to learn more about him. If you would like to see a copy of my test let me know and I will email it to you.
    Happy Holidays,
    Pete Blake

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