I was providing information to a person who left a comment on the My Story page and realized that I had not written a blog about this yet.
It’s important! NIH Study Natural History of Familial Carcinoid Tumor.
The above link is for a study being connected by the National Institutes of Health Clinical Center. Members of families in which two or more blood relatives have had small bowel carcinoid tumors are eligible to participate. Participants will have a medical evaluation every 3 years. If the participant already has carcinoid or are considered at risk for carcinoid will have tests and scans explicitly for carcinoid. If mid gut carcinoid is found then the participant will be assisted to determine the best course of treatment for them.
This could be life saving! Carcinoid is known to run in some families. I would encourage anyone who may qualify to contact NIH for more details. They are recruiting participants now.
May we all have the best possible outcomes.